My friend Mark and his wife Angie have two children, Eva and Zach. Baby Eva had a rough start, but not outside of the limits of normal development. When Eva was a toddler, they noticed that her development was significantly slow and that she seemed to be losing her hearing. After a TON of testing and more, they discovered that she had alpha mannosidosis, a rare disease caused by a recessive gene. They also discovered that they were pregnant with their son Zach. The only treatment for alpha mannosidosisis is a bone marrow transplant. They had a great deal of ups and downs in the hospital with Eva, she had host v. graft issues, infections, and more. She’s now 3.5 years old, home and healthy, while they remain cautious and limit her exposure to illness as much as possible. Baby Zach was born in the fall of 2004 and was tested right away, and found to also have alpha mannosidosis. He just had his bone moarrow transplant last week, and so far is doing great.

Eva McGinnis
5841 St. Rt. 635
Kansas, OH 44841

Zach McGinnis, patient
RB&C Room 2602
11100 Euclid Ave.
Cleveland, OH. 44106

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